National Resources:

National Down Syndrome Society (NDSS)
Contact information: 666 Broadway, New York, NY 10012-2317; helpline 1-800-221-4602

National Down Syndrome Congress (NDSC)
Contact information: 1370 Center Drive, Suite 102, Atlanta, GA 30338, 1-800-232-NDSC

Global Down Syndrome Foundation

Down Syndrome Diagnosis Network

Down Syndrome Research and Treatment Foundation |

Down Syndrome Footprint Foundation |

International Down Syndrome Coalition

Social Networking Sites:

A Place for Special Friends | (social networking site)


Understanding the diagnosis

A Promising Future Together: A Guide for New & Expectant Parents |
Babies With Down Syndrome |
Brighter Tomorrows |
DSACT Down Syndrome in the 21st Century |


Perspectives from parents who received a prenatal diagnosis

Light at the End of the Tunnel |


Early Intervention and Health Care Services

National Dissemination Center for Children with Disabilities |


First Year Medical Issues

Down Syndrome Healthcare Guidelines/ Associated Conditions |
Down Syndrome Health Issues |
Down Syndrome Research and Treatment Foundation |



DSAGC Adoption Awareness Program |


Latest in Down syndrome Research

Down Syndrome Research and Treatment Foundation |


General information about Down Syndrome

National Down Syndrome Society | |  800-221-4602
National Down Syndrome Congress | | 800-232-NDSC
Beach Center on Disability |


NOEWAIT’s Fund Services Now! Video Waiting List Campaign

Attention all parents, guardians,self-advocates, caregivers, service providers, family members, and citizens! Are you concerned about decades-long waiting lists for services for children and adults with special needs such as Autism, Down Syndrome, Cerebral Palsy and others? If so, then please participate in our video campaign. Visit our Action Alert page for details.



GoGrad.orgGraduate School Success for Students with Disabilities


Special Olympics

Special Olympics of Missouri |